#phenylketonuria

Soheb

@soheb@pkutalk.com

From the # UK , does IT things, has # PKU . I made PKU Calculator, and PKU Talk

pkutalk.com

Soheb

@soheb@pkutalk.com

From the # UK , does IT things, has # PKU . I made PKU Calculator, and PKU Talk

pkutalk.com

@soheb@pkutalk.com · Mar 07, 2026

Nailed it, as usual 😏 #Phenylketonuria #PKU #phenylceotnurie #pico #blood #health #nhs

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poconnor

@poconnor@pkutalk.com

Author & Advocate 🐷🖋️ # PKU # BrainInjury # MentalHealth Books # LivingWithPKU # LowPheABC # TheRedHatStories # LivingWithMildBrainInjury Dog: 🐾 # FluffMuppet the Keeshond https:// pigpen.start.page

pkutalk.com

poconnor

@poconnor@pkutalk.com

Author & Advocate 🐷🖋️ # PKU # BrainInjury # MentalHealth Books # LivingWithPKU # LowPheABC # TheRedHatStories # LivingWithMildBrainInjury Dog: 🐾 # FluffMuppet the Keeshond https:// pigpen.start.page

pkutalk.com

@poconnor@pkutalk.com · Mar 06, 2026

March PKU & Brain Health Update: - Rare Disease Day equity report, - PKU research, pancake recipes, - brain injury app trials, - and a book sale ending 7th March! Share your story & support the community. https://www.pigpen.page/march-2026/ #pku #rarediseaseawareness #shareyourstory #phenylketonuria #braininjury

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Soheb

@soheb@pkutalk.com

From the # UK , does IT things, has # PKU . I made PKU Calculator, and PKU Talk

pkutalk.com

Soheb

@soheb@pkutalk.com

From the # UK , does IT things, has # PKU . I made PKU Calculator, and PKU Talk

pkutalk.com

@soheb@pkutalk.com · Mar 01, 2026

To all PKU folks - Share your story! @poconnor@pkutalk.com has got some great PKU stories on her blog - one from yours truly 🧐 - and you can add your story into the mix as well! Visit this link to find out more: https://www.pigpen.page/share-your-story-2/ #phenylketonuria #phenylcetonurie #pku #pcu #lowprotein

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Tristan

@phenylketonurianotebook@pkutalk.com

Gars du Lac St-Jean au # Québec , # Canada . I love photography, cinema, music, technology et j'ai un grand intérêt pour la santé globale. Trying to learn # Linux , je suis particulièrement intéressé par la vie privée en ligne (online privacy). 🔓 Phenylketonuria Notebook is dedicated to sharing experiences and resources about living with PKU. Born from a personal journey, this notebook aims to inform, support, and bring the community together, without medical pretension.

pkutalk.com

Tristan

@phenylketonurianotebook@pkutalk.com

Gars du Lac St-Jean au # Québec , # Canada . I love photography, cinema, music, technology et j'ai un grand intérêt pour la santé globale. Trying to learn # Linux , je suis particulièrement intéressé par la vie privée en ligne (online privacy). 🔓 Phenylketonuria Notebook is dedicated to sharing experiences and resources about living with PKU. Born from a personal journey, this notebook aims to inform, support, and bring the community together, without medical pretension.

pkutalk.com

@phenylketonurianotebook@pkutalk.com · Feb 23, 2026

Je commence à m'intéresser à un aspect hors du commun que je trouve pertinent avec la #phénylcétonurie : la tentation. Ça vous intéresserait une vidéo sur le sujet? I'm starting to take an interest in an unusual aspect that I find relevant to #phenylketonuria: temptation. Would you be interested in a video on the subject?

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Tristan

@phenylketonurianotebook@pkutalk.com

Gars du Lac St-Jean au # Québec , # Canada . I love photography, cinema, music, technology et j'ai un grand intérêt pour la santé globale. Trying to learn # Linux , je suis particulièrement intéressé par la vie privée en ligne (online privacy). 🔓 Phenylketonuria Notebook is dedicated to sharing experiences and resources about living with PKU. Born from a personal journey, this notebook aims to inform, support, and bring the community together, without medical pretension.

pkutalk.com

Tristan

@phenylketonurianotebook@pkutalk.com

Gars du Lac St-Jean au # Québec , # Canada . I love photography, cinema, music, technology et j'ai un grand intérêt pour la santé globale. Trying to learn # Linux , je suis particulièrement intéressé par la vie privée en ligne (online privacy). 🔓 Phenylketonuria Notebook is dedicated to sharing experiences and resources about living with PKU. Born from a personal journey, this notebook aims to inform, support, and bring the community together, without medical pretension.

pkutalk.com

@phenylketonurianotebook@pkutalk.com · Feb 01, 2026

New treatment, new hope. But it is at a very early stage. 👉 https://open.substack.com/pub/pcublogue/p/un-nouveau-signal-du-cote-de-la-recherche #Phenylketonuria #Phenylcetonurie

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poconnor

@poconnor@pkutalk.com

Author & Advocate 🐷🖋️ # PKU # BrainInjury # MentalHealth Books # LivingWithPKU # LowPheABC # TheRedHatStories # LivingWithMildBrainInjury Dog: 🐾 # FluffMuppet the Keeshond https:// pigpen.start.page

pkutalk.com

poconnor

@poconnor@pkutalk.com

Author & Advocate 🐷🖋️ # PKU # BrainInjury # MentalHealth Books # LivingWithPKU # LowPheABC # TheRedHatStories # LivingWithMildBrainInjury Dog: 🐾 # FluffMuppet the Keeshond https:// pigpen.start.page

pkutalk.com

@poconnor@pkutalk.com · Jan 30, 2026

Monthly email on PKU, Brain, and Mental Health: 🆓 A free workshop on Living with PKU 💊 Genetic medicine, personalised treatments, and PKU 🧠 Campaigning for change in strokes and brain injury support and 💉 What is the PKU injection (Palynziq)? https://www.pigpen.page/february-2026/ #PKU #LivingwithPKU #Phenylketonuria #Palynziq #BrainHealth #BrainInjury #Stroke #NHS

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#phenylketonuria

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