Irish ME/CFS Association
@IrishMECFSAssociation@mastodon.ie
The Irish Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Association – for Information, Support & Research. NB: Posts should not be considered advice. Registered Charity Number: 20100254 CHY 22039 #MEcfs #PwME Currently also sharing some items relating to #LongCovid given various research studies have found a significant percentage satisfy ME/CFS criteria
mastodon.ie
Irish ME/CFS Association
@IrishMECFSAssociation@mastodon.ie
The Irish Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Association – for Information, Support & Research. NB: Posts should not be considered advice. Registered Charity Number: 20100254 CHY 22039 #MEcfs #PwME Currently also sharing some items relating to #LongCovid given various research studies have found a significant percentage satisfy ME/CFS criteria
mastodon.ie
@IrishMECFSAssociation@mastodon.ie
·
1d ago
RE: https://mastodon.ie/@IrishMECFSAssociation/116431267742450459
One week to go. Apart from the people who responded to the FB event (one going, 23 interested), two other people have said they hope to attend.
#MEcfs #PwME @mecfs@fedigroups.social
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hbrpgm
@hbrpgm@adalta.social
adalta.social
📺 https://peer.adalta.social/w/kqRH8K2ZTgjShFoaNHUR1g 🔗 🇩🇪🇺🇸🇫🇷 🔗 ℹ️
La publication d’un plan de soins spécialisé marque un tournant dans la prise en charge de ces pathologies invalidantes.
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Tom Kindlon
@tomkindlon@disabled.social
95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness. With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022). Irish ME/CFS Association* trustee 29 years. 26 publications in peer-reviewed journals. MEpedia entry which has links to my social media accounts (among other things): https://me-pedia.org/wiki/Tom_Kindlon #ChronicFatigueSyndrome #MECFS #PwME #fedi22 *IrishMECFSAssociation@mastodon.ie
disabled.social
Tom Kindlon
@tomkindlon@disabled.social
95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness. With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022). Irish ME/CFS Association* trustee 29 years. 26 publications in peer-reviewed journals. MEpedia entry which has links to my social media accounts (among other things): https://me-pedia.org/wiki/Tom_Kindlon #ChronicFatigueSyndrome #MECFS #PwME #fedi22 *IrishMECFSAssociation@mastodon.ie
disabled.social
@tomkindlon@disabled.social
·
Feb 02, 2026
Living with #MECFS
All of these things can be out of reach, or close to, for some #MyalgicEncephalomyelitis patients. Some will be able to attain some of these things at certain points during their illness.
From Lu Baker Art https://instagram.com/lubakerart
(repeat)
#CFS #PwME #ChronicFatigueSyndrome @mecfs@fedigroups.social
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