@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

@tomkindlon@disabled.social · 2d ago

From Germany:

Assessment and Incidence Determination of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Following a SARS-CoV-2 Infection in a Prospective Cohort of Hospital Employees

https://www.mdpi.com/1648-9144/62/3/480

Screenshot from Science for ME weekly update

@longcovid@fedigroups.social
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs@fedigroups.social

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Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

@tomkindlon@disabled.social · 3d ago

Pipeline-optimized machine learning for chronic fatigue syndrome diagnosis: A lightweight, interpretable model using blood biochemical and metabolomic data

https://www.sciencedirect.com/science/article/abs/pii/S1476927126001209

Screenshot from Science for ME weekly update

#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs@fedigroups.social

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Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

@tomkindlon@disabled.social · 3d ago

Stellate Ganglion Block (SGB)

https://longcovidmd.com/videos

Screenshot from Massachusetts ME/CFS & FM Association March 2026 Newsletter
https://massmecfs.org/resources/newsletters

Comment from Tom: I haven't looked at this video or listen to the podcast myself so far.

#LongCovid #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs@fedigroups.social
@longcovid@fedigroups.social

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Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

@tomkindlon@disabled.social · 3d ago

RE: @IrishMECFSAssociation@mastodon.ie

Hope to see a few of you at this 👋.

#MEcfs #LongCovid #CFS #PwME @mecfs@fedigroups.social @longcovid@fedigroups.social

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Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

@tomkindlon@disabled.social · 4d ago

ME Association Rosetta Stone Study – Summary: Three month update

https://meassociation.org.uk/2026/03/rosetta-stone-study-summary-three-month-update/

https://www.youtube.com/watch?v=Q53V4NNZKnQ

Screenshot from Science for ME weekly update

#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs@fedigroups.social

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Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

@tomkindlon@disabled.social · 4d ago

(USA) "The federal funding bill passed in February extended the Medicare teleheath program until December 31, 2027"

https://telehealth.hhs.gov/providers/telehealth-policy/telehealth-policy-updates

https://www.ninds.nih.gov/sites/default/files/2024-05/Report%20of%20the%20MECFS%20Research%20Roadmap%20Working%20Group%20of%20Council_508C.pdf

Screenshot from Massachusetts ME/CFS & FM Association March 2026 Newsletter
https://massmecfs.org/resources/newsletters

#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs@fedigroups.social

#chronicillness #Spoonie

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Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

@tomkindlon@disabled.social · Mar 08, 2026

UK research study

Brain and muscle chemistry in myalgic encephalitis/chronic fatigue syndrome (ME/CFS) and long COVID: a 7T magnetic resonance spectroscopy study

https://www.nature.com/articles/s41380-025-03108-8

Screenshot from AMMES March 2026 newsletter

Hashtags:
@longcovid@fedigroups.social
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs@fedigroups.social

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Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

@tomkindlon@disabled.social · Mar 07, 2026

No long list of tips in this particular blog post by this knowledgeable OT but I agree with the general points e.g. small changes in things like energy conservation and routines can make worthwhile differences.

https://onelifelivedwell.substack.com/p/the-quiet-work-of-making-life-possible

#MEcfs #LongCovid #POTS @pots@fedigroups.social @longcovid@fedigroups.social #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs@fedigroups.social

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Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

@tomkindlon@disabled.social · Mar 07, 2026

Long article on the 'mysterious' illness of NBA star Kristaps Porzingis'

https://www.espn.com/nba/story/_/id/48102994/kristaps-porzingis-mysterious-illness-warriors-uncertain-future

One person has collated just the parts on his health struggles here:
https://www.s4me.info/threads/well-known-famous-people-with-me-cfs-public-thread.31768/post-678954

Viral onset plus all these symptoms suggest ME/CFS as a strong possibility. Best for his long term health I think to take an extended break

#PostExertionalMalaise #PEM #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs@fedigroups.social
#POTS @pots@fedigroups.social

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Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

@tomkindlon@disabled.social · Mar 07, 2026

Years of scapegoating rhetoric has led to ‘envy & resentment’ of those with blue badges, research finds

Note: blue badge = UK name for disabled parking permit

https://www.disabilitynewsservice.com/years-of-scapegoating-rhetoric-has-led-to-envy-and-resentment-of-those-with-blue-badges-research-finds/

Screenshot from AMMES March 2026 Newsletter

#Disabled #Disability #chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll
#MEcfs #CFS #PwME
@mecfs@fedigroups.social @longcovid@fedigroups.social
#LongCovid #POTS @pots@fedigroups.social

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Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

@tomkindlon@disabled.social · Mar 07, 2026

The Diagnostic Challenge of Chronic Fatigue Syndrome

https://www.latimes.com/doctors-scientists/medicine/primary-care/story/chronic-fatigue-syndrome-causes-symptoms-risks-management

Screenshot from AMMES March 2026 Newsletter

#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs@fedigroups.social

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Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

@tomkindlon@disabled.social · Mar 07, 2026

Outcomes of ME/CFS following infectious mononucleosis: seven-year follow-up of a prospective study

https://www.frontiersin.org/journals/medicine/articles/10.3389/fmed.2026.1676628/full

Screenshot from Science for ME weekly update

Note here: severe ME/CFS = satisfies 2+ criteria; moderate ME/CFS = satisfies only one set of criteria

#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs@fedigroups.social

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Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

@tomkindlon@disabled.social · Mar 06, 2026

News Release 5-Mar-2026

"How viruses mess with our brains: A team from the UNIGE and the HUG reviewed 900 scientific articles to better understand the impact of viruses on memory, attention, and concentration"

https://www.eurekalert.org/news-releases/1118866

Hashtags:
@longcovid@fedigroups.social
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
#Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 #CovidIsNotOver
@novid@chirp.social #novid
#MEcfs #CFS #PwME @mecfs@fedigroups.social

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Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

@tomkindlon@disabled.social · Mar 06, 2026

Dutch Agency Funds CBT Training Program Based on Flawed Long COVID Trial (5 March 2026) By David Tuller @davetuller1.bsky.social

https://virology.ws/2026/03/05/trial-by-error-dutch-agency-funds-cbt-training-program-based-on-flawed-long-covid-trial/

#LongCovid #PASC #MEcfs #CFS
@longcovid@fedigroups.social @mecfs@fedigroups.social

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Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

@tomkindlon@disabled.social · Mar 06, 2026

(UK)
House of Commons:

"We have also made progress with our new funding opportunity for development awards focussed on the feasibility of a phase 2 platform clinical trial. This would test multiple repurposed pharmaceutical interventions and/or non-pharmacological interventions for the treatment of post-viral conditions including ME/CFS."

https://questions-statements.parliament.uk/written-questions/detail/2026-02-26/116357

#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs@fedigroups.social

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Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

@tomkindlon@disabled.social · Mar 06, 2026

Progressively Widening Healthcare Costs in Long COVID Over Five Years

https://www.medrxiv.org/content/10.64898/2026.02.24.26346985v1

Screenshot from latest Science for ME weekly update

Hashtags:
@longcovid@fedigroups.social
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC

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Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

@tomkindlon@disabled.social · Mar 06, 2026

Symptom Patterns, Recovery, and Impact of Long COVID: Findings From a Longitudinal Survey

https://dx.doi.org/10.1093/ofid/ofag040

Screenshot from latest Science for ME weekly update

Hashtags:
@longcovid@fedigroups.social
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
#Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 #auscovid19 #CovidIsNotOver

@novid@chirp.social #novid

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Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

@tomkindlon@disabled.social · Mar 06, 2026

From Germany

Association of G-Protein-Coupled Receptors autoantibodies with vasoregulation in Post-COVID

https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0343264

Screenshot from latest Science for ME weekly update

Hashtags:
@longcovid@fedigroups.social
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC

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Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

@tomkindlon@disabled.social · Mar 05, 2026

From a randomised, placebo-controlled trial of Nirmatrelvir/Ritonavir:
"no virological or immunological evidence supports [Paxlovid] as a treatment for Long COVID."

https://www.medrxiv.org/content/10.64898/2026.02.24.26347001v1

Screenshot from latest Science for ME weekly update

Hashtags:
@longcovid@fedigroups.social
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
#Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 #auscovid19 #CovidIsNotOver

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Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

@tomkindlon@disabled.social · Mar 04, 2026

Well done and thanks to the authors of this piece which seems to be well researched 👍👏

Is the RACGP HANDI recommendation of incremental physical activity for chronic fatigue syndrome / myalgic encephalomyelitis harming patients?

https://www1.racgp.org.au/ajgp/2026/march/is-the-racgp-handi-recommendation-of-incremental-p

#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs@fedigroups.social

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Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

@tomkindlon@disabled.social · Mar 04, 2026

CD169+ and HLA-DR+ extracellular vesicles are highly represented in human plasma and dynamically expressed in SARS-CoV-2 infection and long COVID-associated sequelae

https://www.frontiersin.org/journals/cellular-and-infection-microbiology/articles/10.3389/fcimb.2026.1686186/full

Screenshot from latest Science for ME weekly update

Hashtags:
@longcovid@fedigroups.social
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
#Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 #auscovid19 #CovidIsNotOver

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Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

@tomkindlon@disabled.social · Mar 04, 2026

Systematic Examination of Gene Expression and Proteomic Evidence Across Tissues Supports the Role of Mitochondrial Dysregulation in ME/CFS

https://www.mdpi.com/1422-0067/27/4/1997

Screenshot from latest Science for ME weekly update

#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs@fedigroups.social

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Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

@tomkindlon@disabled.social · Mar 04, 2026

From Canada

Single-cell analysis reveals immune remodeling of monocytes, NK cells, T cell exhaustion, and Galectin-9–associated depletion of gamma delta and mucosal-associated invariant T cells in Long COVID with ME/CFS

https://www.frontiersin.org/journals/immunology/articles/10.3389/fimmu.2026.1745933/full

Screenshot from Science for ME update

@longcovid@fedigroups.social
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs@fedigroups.social

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Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

@tomkindlon@disabled.social · Mar 03, 2026

“Norway’s Problematic Draft Guideline Combining Long-Term Fatigue and ME/CFS” by David Tuller

https://virology.ws/2026/03/02/trial-by-error-norways-problematic-draft-guideline-combining-long-term-fatigue-and-me-cfs/

Very disappointing 🙁

“The very real danger of deterioration as a result of too much activity/exercise/repeated PEM is not communicated in a meaningful way. Compare that to the section of medication, where side effects are clearly communicated!”

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs@fedigroups.social

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Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

@tomkindlon@disabled.social · Mar 03, 2026

News Release 2-Mar-2026
"Study identifies molecular cause of taste loss after COVID"

"Research links persistent loss of sweet, bitter and umami taste to reduced levels of key taste-cell protein"

https://www.eurekalert.org/news-releases/1118387

Hashtags:
@longcovid@fedigroups.social
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
#Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 #auscovid19 #CovidIsNotOver

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Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

@tomkindlon@disabled.social · Mar 03, 2026

News Release 2-Mar-2026
Long COVID & recovery among US adults

https://www.eurekalert.org/news-releases/1117998

"With no LC treatment demonstrating clear efficacy, greater investment in understanding biological mechanisms, including immunotypic differences between those who recover and those who do not, may provide insights into pathways of persistence and potential targets for intervention"

@longcovid@fedigroups.social
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #COVIDBrain #NeuroPASC
#COVID19 #COVID #SARSCoV2 #CovidIsNotOver

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Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

@tomkindlon@disabled.social · Mar 03, 2026

Med Sci (Paris) "Covid long : une longue histoire"

French version:
https://www.medecinesciences.org/fr/articles/medsci/full_html/2026/02/medsci20250106/medsci20250106.html

Google English translation
https://www-medecinesciences-org.translate.goog/fr/articles/medsci/full_html/2026/02/medsci20250106/medsci20250106.html?_x_tr_sl=fr&_x_tr_tl=en&_x_tr_hl=en-US&_x_tr_pto=wapp

Screenshot from latest Science for ME weekly update

Hashtags:
@longcovid@fedigroups.social
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
#MEcfs #CFS #PwME

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Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

@tomkindlon@disabled.social · Mar 03, 2026

My maddening battle with chronic fatigue syndrome: ‘On my worst days, it feels almost demonic’

https://www.theguardian.com/society/2026/feb/24/my-maddening-battle-with-chronic-fatigue-syndrome-on-my-worst-days-it-feels-almost-demonic

Screenshot from latest Science for ME weekly update

#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs@fedigroups.social

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Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

@tomkindlon@disabled.social · Mar 01, 2026

I haven't watched this myself so far but have been generally impressed with media interviews Dr. Binita Kane has done

https://www.youtube.com/watch?v=pk00btt7CVs

Hashtags:
@longcovid@fedigroups.social
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs@fedigroups.social

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Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

@tomkindlon@disabled.social · Feb 28, 2026

"Rather than holding onto the idea that the only life worth living is one without disease, consider expanding your definition of hope to include connection, purpose, & meaning under any circumstances"

From:
Recap: Support group: Coping with Depression & Emotional Overload
https://batemanhornecenter.org/wp-content/uploads/2026/02/20260217-Support-Group-Recap.pdf

#MEcfs #CFS #PwME
@mecfs@fedigroups.social @longcovid@fedigroups.social
#LongCovid #POTS @pots@fedigroups.social #chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll

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Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

@tomkindlon@disabled.social · Feb 28, 2026

🧵
"The Quiet Art of Extending a Life: Notes on Assistive Tools, Capacity, and the Dignity of Support"

https://onelifelivedwell.substack.com/p/the-quiet-art-of-extending-a-life

Another thoughtful post from this OT who specialises in ME/CFS & long Covid

She calls such devices "capacity extenders".

#chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll
#MEcfs #CFS #PwME
@mecfs@fedigroups.social @longcovid@fedigroups.social
#LongCovid #POTS @pots@fedigroups.social
#Disabled
#Disability

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Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

@tomkindlon@disabled.social · Feb 28, 2026

Recap: “Support Group: Chronic Illness: Facing Limits and Losses (Moving
through Grief)”.

Notes from a Bateman Horne Center support group meeting

https://batemanhornecenter.org/wp-content/uploads/2026/02/20260203-Support-Group-Recap.pdf

#chronicillness #spoonie #mecfs #longcovid #fibromyalgia #pots @mecfs@fedigroups.social @pots@fedigroups.social @longcovid@fedigroups.social

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Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

@tomkindlon@disabled.social · Feb 28, 2026

From Turkey

"Patients with a history of COVID-19 showed significantly higher odds of meeting ACR 2016 fibromyalgia criteria"

https://www.mdpi.com/2077-0383/15/3/1098

Screenshot from latest Science for ME weekly update

Hashtags:
@longcovid@fedigroups.social
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers
#Fibromyalgia #Fibro #FMS #FM

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Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

@tomkindlon@disabled.social · Feb 27, 2026

37-minute video: "The Biology of Post-Infectious Chronic Illness" with Dr. Anthony L. Komaroff

https://www.youtube.com/watch?v=u282aUTpyIA

I haven't watched so far but he is usually good in these videos

#LongCovid #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs@fedigroups.social @longcovid@fedigroups.social

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Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

@tomkindlon@disabled.social · Feb 27, 2026

R3 Seminar Recap: Long COVID trajectories in adults

5-minutes text summary plus also link to video on paper by members of the research team

https://recovercovid.org/r3-seminar-series/long-covid-trajectories-adults

Hashtags:
@longcovid@fedigroups.social
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
#Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 #auscovid19 #CovidIsNotOver

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Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

@tomkindlon@disabled.social · Feb 27, 2026

Exciting to read about some of the expensive ME/CFS & long Covid research planned in Germany (using some of the €500 million budget) including that using long-term samples which allow comparisons of samples before and after developing the conditions

https://www.helmholtz.de/en/newsroom/article/when-the-infection-is-over-and-the-disease-is-just-beginning/

Hashtags:
@longcovid@fedigroups.social
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs@fedigroups.social

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Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

@tomkindlon@disabled.social · Feb 27, 2026

Northwestern study explores long COVID symptoms across countries (Colombia, Nigeria, the US, India)

https://dailynorthwestern.com/2026/02/26/campus/northwestern-study-reveals-long-covid-patients-more-likely-to-report-cognitive-symptoms-in-u-s-than-other-countries/

Not excited by the intensive cognitive rehabilitation programs mentioned at the end. Not likely suitable for those with PEM

#longcovid #NeuroPASC #CovidBrain @longcovid@fedigroups.social

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Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

@tomkindlon@disabled.social · Feb 27, 2026

RE: @ahimsa_pdx@disabled.social

Press release:
“Solve M.E. Funds GLP-1 and Immune Target Studies to Accelerate ME/CFS and Long Covid Breakthroughs”
https://www.prnewswire.com/news-releases/solve-me-funds-glp-1-and-immune-target-studies-to-accelerate-mecfs-and-long-covid-breakthroughs-302695418.html
#MEcfs #LongCovid #PwME #CFS @mecfs@fedigroups.social

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Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

@tomkindlon@disabled.social · Feb 27, 2026

From David Tuller

The Times covers another severe case, Guardian has a non-triumphalist piece about "brain-retraining" and ME/CFS (it seemed to work completely for a while, and then came another relapse), and more:

https://virology.ws/2026/02/27/trial-by-error-recent-readings-the-times-and-another-severe-case-guardians-equivocal-take-on-brain-retraining-boston-globe-long-covid-tale/

#MEcfs #LongCovid #CFS #PwME @mecfs@fedigroups.social

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Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

@tomkindlon@disabled.social · Feb 27, 2026

RE: @tomkindlon@disabled.social

Hampshire Chronicle:
“Research into ME/CFS to be discussed at event in Winchester”
https://www.hampshirechronicle.co.uk/news/25879675.research-cfs-discussed-event-winchester/
#MEcfs #PwME #CFS @mecfs@fedigroups.social

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Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

@tomkindlon@disabled.social · Feb 27, 2026

Some information via Prof Simon Carding about the DISCOVER-ME research project that has received €7.5 million in EU horizon funding.

From
https://www.s4me.info/threads/eu-horizon-funding-prof-simon-carding-%E2%82%AC7-5-million.49054/post-677271

Well done to all involved and all the charities that have helped make it happen

#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs@fedigroups.social

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Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

@tomkindlon@disabled.social · Feb 27, 2026

Persistent inflammatory cytokine signature in long Covid-19 patients: a meta-analysis

https://link.springer.com/article/10.1007/s10787-025-02033-0

Screenshot from latest Science for ME weekly update

Hashtags:
@longcovid@fedigroups.social
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC

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Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

@tomkindlon@disabled.social · Feb 27, 2026

From Singapore 🇸🇬

Early administration of neutralizing monoclonal antibodies and post-acute sequelae of COVID-19

https://www.ijidonline.com/article/S1201-9712(26)00070-6/abstract

Screenshot from latest Science for ME weekly update

Hashtags:
@longcovid@fedigroups.social
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
#Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 #auscovid19 #CovidIsNotOver

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Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

@tomkindlon@disabled.social · Feb 26, 2026

Best of luck to ME Support Northern Ireland with this new departure. I encourage everyone in Northern Ireland to make contact with this group. I have known Antoinette and her sister Jeanette for around 2 decades

https://belfastmedia.com/milestone-for-m-e-support-as-they-welcome-first-paid-staff-member

#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs@fedigroups.social

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Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

@tomkindlon@disabled.social · Feb 26, 2026

"Welcome to the 125th edition of the Research Digest...spanning biological mechanisms, lived experience, and illness trajectories."

https://emerge.org.au/researchdigest/research-digest-issue-125/

#LongCovid #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs@fedigroups.social @longcovid@fedigroups.social

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Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

@tomkindlon@disabled.social · Feb 26, 2026

From 🇩🇪

ICD-10 Diagnoses prior to ME/CFS diagnosis in children and young people suggest potential early diagnostic indicators

https://www.nature.com/articles/s41598-026-40848-1

Interesting topic. I prefer this paper to some by Peter White & Simon Wessely

#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs@fedigroups.social

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Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

@tomkindlon@disabled.social · Feb 26, 2026

Auckland, New Zealand study that still needs #MEcfs participants:

Investigating alterations in the expression of small RNA molecules (miRNA) in ME/CFS (and Long Covid-ME/CFS)

More info
https://www.s4me.info/threads/news-from-aotearoa-new-zealand-and-the-pacific-islands.4230/post-676986

Please share widely

#CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs@fedigroups.social

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Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

@tomkindlon@disabled.social · Feb 26, 2026

From 🇪🇸

"Our findings indicate pediatric long COVID is associated with a dysregulated immune response characterized by altered innate immunity & overactivated T-, B- and NK-cell responses."

https://insight.jci.org/articles/view/201111

Screenshot from Science for ME weekly update

@longcovid@fedigroups.social
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
#LongCovidKids #LCKids

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Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

@tomkindlon@disabled.social · Feb 26, 2026

Assessment of dynamic cerebral blood flow changes during cognitive tasks in patients with post-COVID-19 syndrome

https://dx.doi.org/10.1093/braincomms/fcag036

Screenshot from latest Science for ME weekly update

Hashtags:
@longcovid@fedigroups.social
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC

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Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

Tom Kindlon

@tomkindlon@disabled.social

95% of posts on # MyalgicEncephalomyelitis , # LongCovid or # chronicillness . With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022).  Irish ME/CFS Association* trustee 28 years.  26 publications in peer-reviewed journals.  MEpedia entry which has links to my social media accounts (among other things): https:// me-pedia.org/wiki/Tom_Kindlon     # ChronicFatigueSyndrome # MECFS # PwME # fedi22  *IrishMECFSAssociation@mastodon.ie

disabled.social

@tomkindlon@disabled.social · Feb 25, 2026

(US)
“Where an application for Disability Insurance Benefits was denied by an administrative law judge, that decision should be upheld despite the applicant’s contention that the ALJ did not properly evaluate his chronic fatigue syndrome and myofascial pain syndrome and related limitations.”

https://rilawyersweekly.com/blog/2026/02/24/social-services-disability-34/

Archive:
https://archive.ph/2026.02.25-120253/https://rilawyersweekly.com/blog/2026/02/24/social-services-disability-34

#mecfs @mecfs@fedigroups.social

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