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#actuallyautistic

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@adelinej@piaille.fr · 1d ago
Dear autistic community how do you deal, if you are able to deal with it, anticipation anxiety? I had a ressource about that with suggestions but I can’t find it anymore. I am talking only about our anticipation anxiety and NOT the kind experienced by non autistic people. If you don’t know what I’m talking about check this blog post from one of us describing one example. The author describes what it looked like when they were in a school environnement. https://jeffsnyderautismneurodiversityselfadvocate.wordpress.com/2025/01/16/blog-503-anticipation-anxiety/ #ActuallyAutistic #autism @autistics@fedigroups.social
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@pathfinder@beige.party · 1d ago
@autistics@fedigroups.social A number of different conversations on here recently has prompted me to remember something. When I was a teenager we had a next door neighbour who was in her 90's and still lived alone. Sometimes people would comment on how great it was that she could still be independent at her age and I would always completely agree. Despite knowing that, Long before home deliveries, I did her shopping every week and picked up her prescriptions. My mother would help her with any official correspondence that needed replying to and any phone calls that she needed to be made, (mostly because the old dear was profoundly hard of hearing.) Another neighbour took her to church every week and to any appointments she had. A friend from church looked after her garden and another one would do any DIY jobs, or heavy lifting that needed doing. And yet, everyone still saw her as living independently and this is because independence has always been health and age related and by those standards she did. And because hardly anyone lives truly independently of everyone else. There is always occasional and more than occasional food, or help, or just someone you can call on, whether that be a neighbour, or friend, or relative, for baby sitting, or lifts, or whatever. Independence as an absolute doesn't really exist, and hardly anyone views it that way. Except, perhaps, us. I don't know whether it is our tendency towards black or white thinking, or perhaps the perfectionism we often view things by. But for many of us, and perhaps more so for those of us realising we're autistic later in life, the trap of viewing our desire and need for independence by the absolute standard of all or nothing, is something that we are only too prone to fall into. And then, of course, end up wondering why we can't live that way and blaming ourselves accordingly. #Autism #ActuallyAutistic
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@jeffowski@mastodon.world · 4d ago
#ActuallyAutistic #neurodivergent #autistic #autism #AuDHD
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@Cassandra@ottawa.place · 5d ago
So excited about a food option I just remembered exists that I started clapping. #ActuallyAutistic
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@blogdiva@mastodon.social · Apr 01, 2024

SO IT’S #Autism Awareness Month?

since am one of those #ActuallyAutistic people Dx at the tender age of 50 (yes, 50. and yes am older now, shut up), am not acquainted with the american rituals of national days or awareness months involving autism.

welp, let me do this as a gentle reminder:

  1. BLACK
  2. INDIGENOUS
  3. PUERTO RICAN
  4. CARIBBEAN
  5. LATINOAMERICANES
  6. WOMEN

can be #autistic too.

and in my case: #dyslexic with a sprinkling of good ol’ extra spicy #ADHD.

but ironically, 🧵

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@nerdfall@social.tchncs.de · 6d ago
Ist es gerade #Mode , in ein fachliches größeres #Meeting einzusteigen mit „Wie ist dein Energielevel gerade?“ „Wie fühlst du dich?“ „Wie bist du hier?“ (Ich dachte, das #Verkehrsmittel sei gemeint, nein, es ging um‘s Befinden.) Ich hatte so Termine 3x diese Woche und fand es furchtbar.Ich hab mir angewöhnt immer nur „okay“ zu sagen. Für eine ehrliche Antwort müsste ich mehr als 1 Minute nachdenken, bräuchte Messwerte, sie würde alles abwägen und wäre entsprechend zeitraubend. Außerdem würde es eh niemand interessieren und auch nix angehen. Im Übrigen bin ich gekommen, um ein #IT Problem zu lösen, nicht Befindlichkeiten zu diskutieren. Und Menschen werden dadurch zum #lugen genötigt. Wer sagt schon „schlecht“ bei sowas?. #ActuallyAutistic #buro
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@filmfreak75@mastodon.social · Apr 23, 2026
@autistics@fedigroups.social #ActuallyAutistic every once in awhile i find something useful on LinkedIn
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@thereaders@disabled.social in mutual_aid · Apr 21, 2026
Still trying to get any money at all for food My goal is $40 but I will literally accept anything. etrans: tasiathereader@gmail.com https://www.paypal.com/paypalme/ourinsatiabesouls #BlackMutualAid #MutualAidRequest #BlackMastodon #queermutualaid #HelpFolksLive2026 #Queercrowdfund #disability #disabilityaid #actuallyautistic #DisabilityCrowdFund #MutualAid @mutual_aid@hexbear.net @mutual_aid@starflower.space @MutualAidVisibility@mastodon.social @anarchomutual@freeradical.zone @blackfedi@fedigroups.social
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In reply to
@wil@beige.party · Mar 29, 2026
@electricbraindump@mementomori.social Welcome! I'm not sure if we have a specifically AuDHD group here but there's lots of autistic folks. Check out @autistics@fedigroups.social and #ActuallyAutistic for some connections. You might also enjoy this site, we watch all kinds of music videos and lesser known movies. https://dumb-industries.com/weird
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@hmm_cook@universeodon.com · Apr 09, 2026
I’ve avoided plenty of social situations in my life, but I’ve never actually followed through with my fantasy of becoming a hermit in the woods. 1/3 #ActuallyAutistic #AuDHD #Autistic #Neurospicy #Neurodiversity
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@Zumbador@mefi.social · Apr 09, 2026
For people out there who are starting on the "am I autistic" journey, and are feeling the bite of imposter syndrome. Does it help to replace "autistic" with "a person who is allowed to say what their needs are, and claim those needs without having to apologize" ? You're allowed to do that even if you're not autistic. That doesn't mean it doesn't matter whether or not you're autistic. It does! You need accurate information about yourself. Don't stop that search. But you're allowed to claim your needs whether or not you are autistic. You get to decide what your needs are, and who you are. Even if you are not autistic. Even if it's "just" anxiety and depression, that doesn't make you broken or wrong, too sensitive, or too much. There is nothing shameful about being the way you are, whatever your neuro-status. You are allowed to take up space, and have inconvenient needs, and decide for yourself who you are. #ActuallyAutistic
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@hmm_cook@universeodon.com · Apr 08, 2026
Western society has a complicated history with mental health. Many people have been demonized, cast aside, and worse, when they didn’t meet artificial, unrealistic, standards for mental health. 1/2 #ActuallyAutistic #AuDHD #Neurodiversity #NeuroDivergent #Neurodiverse #ND
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@dima@dol.social · Apr 07, 2026
I spent years thinking shared lunches were a struggle for everyone. I assumed we all just suffered through them out of politeness. Realizing that most people actually enjoy this (that it even recharges them) hit me like a total system crash. For me, social interaction is a crisis. I feel like a tiny person locked inside my head, desperately trying to pilot a "meat robot" that is in emergency mode, scanning for the nearest exit to save my sanity. It is a strange feeling when you realize your "normal" was actually a high-alert survival protocol. My battery just leaks in public. I mean, even talking with a colleague 1-on-1. And it's not a "social battery", it's the main and only one I have. #Neurodivergent #ActuallyAutistic #Masking #SocialOverload #MentalHealth #TechPhilosophy #Health #Thoughts #Fediverse
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@joshsusser@autistics.life · Apr 02, 2026

Today is officially #WorldAutismAwarenessDay, designated by the United Nations as day of recognition and appreciation. This kicks off #AutismAwarenessMonth, which many of us call #AutismBewarenessMonth because it’s always much more about “here’s how bad autism is” than “here’s how to make autistic people’s lives better”. When we want to be more positive than snarky, we call it #AutismAcceptanceMonth, because it’s better to be accepted than for people to be aware of us mainly as a set of problems.

The problem with the above is that all that awareness and acceptance is something that allistic people are supposed to do, so the occasion centers allistic people instead of autistic people. The whole month is about how allistic people think and feel about us – it’s not actually about us at all!

But over on Bluesky, Aslynn (@audhd-psychnp.com) hit on some better branding: Autistic People’s Month! I really like this, as it centers us in our own celebration. #AutisticPeoplesMonth is not about how anyone else feels about us, but about our own existence, accomplishments, problems, and all the rest. I hope this catches on, so doing my part to make it happen. April is now ours!

#ActuallyAutistic #autistic #autism #neurodiversity

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@hmm_cook@universeodon.com · Apr 02, 2026
For every AuDHD solopreneur who's been told to "just be more consistent" or "put yourself out there more"— This one's for you. Self-employment strategies that work WITH your brain. Available now → http://www.autismchrysalis.com/audhd-solopreneur Link in bio #ActuallyAutistic #AuDHD #AutisticBusiness #NeurodivergentEntrepreneur #AutisticFreelancer
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@hmm_cook@universeodon.com · Mar 31, 2026
FYI, tomorrow is the last day for the early bird sign up bonus for my Autistic self-employment course. Learn to build systems into your business that prevent burnout by design. It's not tips and tricks. Not "just rest more." It's real structure that creates the outcomes you want. http://www.autismchrysalis.com/alchemy #ActuallyAutistic #AuDHD #AutisticBusiness #Neurodivergent #SelfEmployment #AutisticBurnout #SmallBusiness
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@hmm_cook@universeodon.com · Mar 30, 2026
Every self-employed Autistic I work with blames themselves. They're exhausted, stressed, wondering if they're cut out for this. But they're not the problem. Standard business advice wasn't built for neurodivergent brains. #ActuallyAutistic #AuDHD #Autistic #Neurospicy #Neurodiversity 1/2
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@undefined_variable@mementomori.social · Mar 30, 2026
#ActuallyAutistic #AuDHD What I needed to do to manage to fill out a single form for the social welfare office. -Take a two-hour shutdown nap in preparation -A careful mix of sedatives and diet cola to optimize my functional capabilities -Go to bathroom three times for emergency jettison of extraneous weight After-action report: Apprx 45% functionality achieved. My tummy feels like there's crude oil reserves there, I have a nasty migraine-like headache, and the next shutdown is coming on shortly. But only slight dissociation! So all and all fairly successful operation.
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@undefined_variable@mementomori.social · Mar 28, 2026
You might be over-stimulated if... ...your stims look like Keith Moon playing Don't get fooled again :meow_nervous2: #ActuallyAutistic
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@undefined_variable@mementomori.social · Mar 24, 2026
Right, here we go, ExpectoMode activated. Got a short trip this weekend, a bit longer trip over the Easter, and then The Move in mid-April. Already my tummy feels like I've swallowed a roto-rooter and... Let's just say irritable doesn't quite do it, let's call it irate... :meow_sweat: #ActuallyAutistic
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